Imparting knowledge
KMSK Knowledge Books Rare Diseases
Our KMSK knowledge books "Rare diseases" make an important contribution to the continuous transfer of knowledge and are distributed free of charge to our dialog groups (newly) affected families, gynaecologists, midwives, paediatricians, family doctors, geneticists, eye and ear specialists, therapists, psychologists, children's hospitals, health insurers, health politicians, teachers, researchers at universities, pharmaceutical employees, IV employees, trainees, the media and the general public. We want to impart knowledge and understanding on the subject of "Rare diseases in children". The KMSK knowledge books are made possible by long-standing partners and the support of photographers and copywriters.
Since January 2023, our new Rare Diseases Knowledge Platform has been available free of charge for professionals and affected families in German, French, Italian and English!
KMSK Knowledge Book Rare Diseases No 6
CASE MANAGEMENT AND DIGITALIZATION RELIEVE PARENTS
In the sixth KMSK Knowledge Book "Rare Diseases - Case Management and Digitalization Relieve Parents", we address the challenges in the interaction between parents, doctors and other stakeholders, let affected families and specialists have their say and point out possible solutions. Order your free copies today!
KMSK Knowledge Book Rare Diseases No 5
RARE DISEASES - DIGITAL KNOWLEDGE PLATFORM FOR PARENTS AND PROFESSIONALS
With the 5th KMSK Knowledge Book "Rare Diseases - Digital Knowledge Platform for Parents and Professionals", we are providing (newly) affected families and professionals with a sustainable aid tool. The book was developed in close collaboration with our 725 affected KMSK families and great guest authors, photographers and journalists. May this concentrated power of knowledge and experience make the often arduous everyday lives of the approximately 350,000 children and young people affected by a rare disease in Switzerland a little easier so that they can spend more time with themselves and their families. The book can be ordered free of charge and is available as a PDF.
Biography Sevin, butterfly disease
BEAUTIFUL, STRONG AND VULNERABLE
When Şevin was asked what she wanted, her answer was: "A biography about me and my life - so that my story lives on, even when I'm no longer in this world!" So, together with the Förderverein für Kinder mit seltenen Krankheiten, a crowdfunding campaign was launched. The project was financed within a few weeks and Şevin was overjoyed. Special thanks go to the journalist, Barbara Stotz Würgler. She took a lot of time to conduct the numerous interviews with Şevin and her family.
KMSK Knowledge book rare diseases No 4
RARE DISEASES - PSYCHOSOCIAL CHALLENGES FOR PARENTS AND SIBLINGS
Thanks to the knowledge of our KMSK families, the fourth KMSK knowledge book "Rare diseases - psychosocial challenges for parents and siblings" has already been published. This book sheds light on the diverse tasks that arise for affected families and shows what helps them to cope. After all, a rare disease upsets the lives of affected families, destroys dreams and life plans and is a huge challenge for mothers, fathers and siblings.
KMSK Knowledge book rare diseases No 3
RARE DISEASES - THERAPIES FOR CHILDREN AND SUPPORT FOR FAMILIES
The third KMSK Knowledge Book on Rare Diseases shows which specific support options are available in everyday life, which forms of therapy have proven successful for affected families and where they can get help if they lose sight of the big picture. Edition of 11,000 copies, 300 books are still available.
KMSK Knowledge book rare diseases No 2
RARE DISEASES - THE PATH - GENETICS, EVERYDAY LIFE, FAMILY AND LIFE PLANNING
The second KMSK Knowledge Book shows the lives of the families concerned. Various stages are illuminated: From the first signs of an illness, medical and genetic investigations, everyday life to family and life planning. Print run 11,000 copies, 800 books available.
KMSK Knowledge book rare diseases No 1
RARE DISEASES - INSIGHTS INTO THE LIVES OF AFFECTED FAMILIES
With the first edition of the KMSK knowledge book "Rare diseases - insights into the lives of affected families", we wanted to raise awareness of the families in Switzerland whose children are affected by a rare disease. Edition of 10,000 copies, 500 books available.
Presentation of the support association
KMSK MAGAZINE SELFCARE RARE DISEASES
The first KMSK magazine SELFCARE is intended to give our dialog groups an in-depth insight into our challenging work. We also want to show how affected families, doctors, employees and patrons get involved in new projects for the support association for children with rare diseases and how they perceive the collaboration.