Together
help

Partnerships and memberships - helping affected families together

Partnerships and memberships always focus on common, sustainable interests that improve the quality of life for affected families and on knowledge transfer.

Lions Club Magglingen

Lions Club Magglingen - Commitment to children with rare diseases

With the annual +442m Bienne-Magglingen run, the Lions Club Magglingen, together with the Förderverein für Kinder mit seltenen Krankheiten and the young and old runners and their sponsors, has been supporting affected families in the Biel, Solothurn, Neuchâtel and Bern region in the direction of western Switzerland with great commitment since 2021. We would like to thank them for their long-term cooperation and support for the families affected. https://442.run/de/

RDAF Rare Disease Action Forum

Membership - RDAF Rare Disease Action Forum

The Rare Disease Action Forum (RDAF) is a non-profit, multi-stakeholder association in Switzerland whose mission is to improve the lives of rare disease patients. Its collaborative approach provides a platform for experts in the field of rare diseases to exchange ideas and improve patient access to diagnosis, treatment and care. The RDAF consists of members from patient and research organizations, industry and healthcare professionals working in the field of rare diseases.
https://rda-forum.org/

IG for rare diseases

Membership - IG for rare diseases

The interest group wants to contribute to improving the situation of patients with rare diseases. It therefore supports the federal government in the development of a national action plan, promotes the exchange of information and raises awareness among politicians, the administration and the public.
https://ig-seltene-krankheiten.ch/