KMSK Magazine
SELFCARE
A lot of passion and a clear strategy
In our KMSK magazine Selfcare, we would like to give you a deeper insight into our daily work. It is a new tool to address our dialog groups and show you what moves our 830 KMSK families. We also want to bring to life how affected families, doctors, employees and patrons perceive and support the work of the Förderverein für Kinder mit seltenen Krankheiten.
We will take you on the journey of the association, which celebrated its tenth anniversary on February 20, 2024. When I founded it ten years ago, I could never have imagined that we would manage to achieve so much in that time! Through our work, we have been able to significantly raise awareness among the general public and politicians. The approximately 350,000 children and young people throughout Switzerland who are affected by a rare disease have finally been given a face and a voice thanks to our measures.
Since the beginning, we have pursued a clear strategy - supporting families financially, connecting families and promoting the transfer of knowledge. The continuous development of these three focus topics is only possible thanks to the close exchange with our KMSK families and specialists. Projects such as the six KMSK Knowledge Books on Rare Diseases, the KMSK Knowledge Platform and the KMSK Knowledge Forum have arisen from the specific needs of affected families. The aim is for as many people as possible to benefit personally or professionally.
Even after ten years, it still touches me and my team every time we receive positive feedback on our efforts. The feeling of being able to support and accompany an affected family on their new journey through life is simply priceless and continues to drive our motivation.
We would like to express our sincere thanks to the affected parents, specialists, patrons and donors for their trust!
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