Elina has the rare diagnosis of Peter's anomaly. Just like our family name, which is very special. Elina is 10 years old and has very good fine motor skills as she reads Braille and everything is geared towards her sense of touch. We would therefore also like to develop her gross motor skills and do lots of different activities with her. She enjoys skiing, scootering, cycling and hiking. The tandem would be great so that Elina can finally take part in longer tours again.

8-year-old Ilai loves cycling, but since he was diagnosed with ANE (Acute Necrotizing Encephalopathy) 4 years ago, he can no longer cycle independently. A special tandem with three wheels would enable the family to go on bike rides together again. ANE stands for a cell-killing brain inflammation that can occur in previously healthy children after a viral infection (usually influenza).

17-year-old Noelia is affected by the rare CTNNB1 syndrome. This genetic defect affects her ability to walk, speak and think. Noelia is dependent on a wheelchair and the spasticity in her legs is steadily increasing. To improve Noelia's quality of life, the family would like to make an appeal for donations for two 2-week intensive therapy sessions at the Axis Medical Center in Slovakia in autumn 2023 and 2024.

Simea loves riding her bike. The 8-year-old enjoys being out and about on her bike. However, she has less and less strength to ride herself. Simea was born with Louis Bar syndrome, a rare degenerative genetic defect. Among other things, this causes a movement disorder, making it increasingly difficult for her to cycle on her own. With a tandem with a reclining seat at the front, she can go on great outings with her family again. The disability insurance does not cover the cost of a leisure bike. We are therefore collecting donations for the special bike so that Simea can feel the wind in her face again.

Eleonora is affected by the rare disease semilobar holoprosencephaly with cerebellum agenesis.

She cannot walk and can only speak a little. At 6 1/2 years old, she is retarded. Many operations and epilepsy have made her anxious. To promote her motor skills and independence

we would like to take her to dolphin therapy in Coracao. The water gives her a different physical sensation. Unfortunately, the IV and KK will not cover the costs.

8-year-old Louis was born with one of the most severe forms of spina bifida (colloquially known as "open back") and will probably continue to lose his ability to walk. In order to maintain this for as long as possible, we would like to improve his therapy through daily exercises with a suitable vibration plate. This can improve his intermuscular coordination, which in turn would have a positive effect on his gait and reduce the frequency of his falls in everyday life. Unfortunately, despite the doctor's recommendation, the IV has refused to provide funding.

Benedikt was born with Wolf-Hirschhorn syndrome, a very rare genetic defect that occurs in around one in 50,000 newborns. Nobody knows how Benedikt will develop. This makes it all the more important for the family to be able to enjoy their time with Benedikt. To give him more mobility and enable the family to go on outings together, their greatest wish is for a special tandem so that the 10-year-old can join them on family outings.

Six-year-old Nina was born with the rare Kleefstra syndrome. This genetic disorder is associated with developmental delay and muscular hypotonia, among other things. Hippotherapy can be used to optimally train and strengthen her trunk muscles in particular (recommended by a physiotherapist and neuropaediatrician). The costs are not covered by IV or health insurance. Nina & her parents would like to thank you for your support.

8-year-old Luca was born with a rare genetic defect on chromosome 15 (Angelman syndrome) and is unable to speak or walk independently. He is severely disabled both physically and mentally. He moves around on his knees during the day and is mostly in a wheelchair. With a special bike, he can go on great outings with his family, which also supports his development. Luca is already thankful that he will soon be able to feel the wind in his face and go on bike rides with his family.

Kerem's genetic defect in the ALS2 gene is a physical impairment that prevents the correct control of all four limbs and muscles because the nerves are not transmitted correctly from the brain to the body. It is degenerative but does not affect cognitive development. Kerem is unable to walk freely, sit independently and it also restricts his speech. Until he was 2 years old, Kerem was still able to walk partially with a walker, but has since lost this ability. Kerem is dependent on 24-hour care from us parents for all activities (care, eating, changing, transfers, getting around, etc.).

Luana has a rare defect in the NACC1 gene and is at the developmental stage of a 1-year-old child: she is not yet able to walk, eat or speak independently. Her parents want to give Luana the best possible support and develop her potential. Luana is very eager to learn and has a strong will. First Step is a family-supplementary therapy and helps not only Luana but the whole family to deal with the illness. As the costs are not covered by IV or health insurance, Luana's parents would like to thank you for your donations!

Only noémie is 8 months old, an open spinal canal, a so-called spina bifida, is diagnosed Spina bifida, was diagnosed. The now 6-year-old girl suffers daily from hellish attacks of pain every day. The parents are often on the edge of their strength; seeing their Seeing their daughter suffer so much is unbearable for them. A great wish of the family of three: to go on bike rides together! This would be possible with a special bike, but the parents cannot afford it; the IV does not cover the costs does not cover the costs. That's why we are collecting donations for Noémie's heart's desire!

Since birth, Sevin has been affected by the incurable rare disease Epidermolysis bullosa (butterfly disease); her skin peels off at the slightest the slightest stress, her skin The deepest layers and scars like those caused by burns appear Burns. Her fingers and toes are fused together and she suffers from unbearable pain Pain. Sevin can no longer go to school, can no longer write or draw and draw, or go out with friends. Sevin has one one great wish: she wants her moving story to be moving story be told in a book to help other affected children Children with rare diseases and their parents and to shake up society shake up society.

The Sisters Melina and Juliana have metachromatic leukodystrophy, a rare neurodegenerative disease neurodegenerative disease. While Melina has become fully dependent on care, juliana is doing much better after undergoing gene therapy. Both girls have recently treated by a Chinese doctor and are making great progress Progress: Juliana in the direction of walking freely, Melina has much fewer Episodes and a much better quality of life. Unfortunately, the high Unfortunately, the high costs of the therapy are not covered by the IV or the health insurance.

Juri had his first epileptic seizure with loss of consciousness when he was just 12 months old. In the years that followed, the seizures recurred constantly and Juri's life was in danger several times. The boy spent many hours in hospital, which in turn made it impossible for him to attend regular school. The dilemma: Juri is unable to cope at a mainstream school and is too strong for a special school. The private school "Rudolf Steiner Schule Zürcher Oberland" fits Juri's needs perfectly, he feels comfortable there, has friends and supportive teachers. Unfortunately, his single mother can no longer afford the school fees and receives no support from the state.

Sophia is affected by the rare genetic defect Kif1A. She has a huge developmental delay as an 8-year-old, cannot yet walk and does not speak. To Her gross and fine motor skills, Sophia's parents would like to give her a two-week intensive Intensive therapy at the Adeli Rehabilitation Center in Slovakia. "She is now at a stage where she is extremely receptive and able to learn. In Place for therapy would not be available in Switzerland until 2022, which is why the Adeli Center in Slovakia was recommended to us," says Andrea, Sophia's mom. The only Problem: IV and health insurance don't pay for therapy abroad.

Noah is affected by the rare disease "Duchenne muscular dystrophy; around one in of every 3300 boys is born with this rare hereditary disease. Noah that he could play field hockey like his big brother. As Noah is dependent on a wheelchair, he needs a special electric wheelchair for "Powerchair Hockey" a special electric wheelchair. His parents cannot afford this, iV or health insurance will not cover the costs.

Fiora is affected by Rett syndrome, a rare disease. She can neither speak nor walk and is 100% dependent on help from others. Dolphin therapy has proven effective in promoting her development and improving her quality of life. We were able to finance her stay at the dolphin therapy center.

"We would like to thank all donors from the bottom of our hearts for their incredible generosity, which made it possible to realize the dolphin therapy for our daughter Fiora within a very short time. We are touched and overwhelmed by the great solidarity shown to us. A big thank you to everyone!" Dad Boris

Alessia 5-year-old Alessia is affected by a complex and rare brain malformation. She has several epileptic seizures every day, cannot see, cannot move move and is fed via a tube. In short, Alessia is dependent on care 24 hours a day her single mother is often on the edge of her strength. A special cargo bike would would fulfill a long-cherished wish for the family of four. "We would have more family time together and Alessia would be able to participate more in life. As we don't have a car, it would also make our everyday lives easier."

Simon is affected by hypoplastic left heart syndrome (HLHS), has three holes in his heart wall in his heart wall and an artificial aorta. His condition is very rare; around two in 10,000 newborns are born with this malformation. To Development, and because he loves animals, his parents would like to give him hippotherapy for him. Unfortunately, the IV does not cover the costs costs and the parents cannot afford it.

Noemi is affected by a rare disease, neurofibromatosis type 1. As a result, she has a large inoperable brain tumor and has to undergo stressful chemotherapy for the second time Chemotherapy for the second time. Moments of joy are rare for the little girl Girl are rare. But when she sits on a pony, she is happy. The Her mom cannot afford hippotherapy, the IV has rejected the application Rejected the application. At the same time, the single mother urgently needs relief in her everyday life. We are collecting donations for Noemi's hippotherapy and her mother's relief services.

Radio Energy Zurich is calling for a Christmas donation for Fin who is affected by the rare West syndrome and muscular hypotonia. The donation will be used to fund Fin's life-improving "delphineoos® dolphin therapy without dolphins". This therapy method has already shown great success in the past and brought a smile to Fin's face.

Update:

Thanks to donations and generous benefactors, the delphineoos® therapy could be financed and will be carried out in fall 2021. Thank you from the bottom of our hearts!

5-year-old Rayan is affected by a complex malformation of the cerebral cortex affected. He is unable to speak, stand, walk or sit. The "ADELI therapy" is designed to support Rayan's development and improve his quality of life Improve his quality of life. As the therapy is not covered by IV/health insurance paid we are collecting donations for this.

Update:

Thanks to donations and generous benefactors, Rayan's Adeli therapy (CHF 8 000.-) could be financed as of 3.12.2020. Thank you from the bottom of our hearts!

Melina is severely disabled and is cared for cared for around the clock by her parents and siblings. Nobody knows how Melina will develop and what her prognosis is. This makes it all the more important for the family to be able to enjoy their time with Melina. Their big wish is therefore a special cargo bike so that the 5-year-old can get around on family outings Year-old can join them on family outings.

Update:

Thanks to donations and generous benefactors, the special bike (CHF 10,000) could be financed as of 3.12.2020. Thank you from the bottom of our hearts!