COMMISSIONER

with heart

Former Swiss national soccer player from 1996 to 2008

"As a former national player, I know how important a healthy body and mind are. Since becoming the mother of a healthy daughter, I appreciate this even more. For most people, the fact that a child is born healthy seems to be the most normal thing in the world. But the complexity of a birth and what a miracle a human being is is often forgotten or even underestimated. As an ambassador for the Förderverein für Kinder mit seltenen Krankheiten, I want to help give children with rare diseases and their families more visibility, a voice, support and stability. "Former Swiss national footballer from 1996 to 2008

Ambassador since 2023

Swiss racing wheelchair athletes

"There are 1000 dangers lurking for us every day - most of the time we are lucky - but a few are hit extremely hard! Sometimes from birth, often gradually, but also suddenly from one second to the next, our lives can change. Through interest, lived solidarity, appreciation and attention, we can turn those affected into important ambassadors of values that show us that our intactness cannot be taken for granted. Let us be inspired and emotionally moved when children and young people with rare diseases give us and show us the joy of life."

Ambassador since 2022

Managing Director General Contractor Bäbler & Blumer GmbH

"Children with rare diseases and their environment struggle every day, sometimes with things that are simple and banal for us. Far too often we forget, in our ever faster spinning world, that this is not so self-evident. When I see how happy these children are about little things at a KMSK family event, for example, it fills me with pride and joy to be an ambassador for the association that supports children with rare diseases. A child's smile is the most beautiful thing in the world, it comes from the heart and is fundamentally honest."

Ambassador since 2020

Owner of the music school "Piano Lessons"

"During my studies, I felt most fulfilled when I was given the opportunity to teach children with visual and hearing impairments. Unfortunately, I missed out on building a closer relationship with the families to understand their experiences. As a full-time piano teacher now working with adults and children of all ability levels, I was able to observe my students' growth, joy and passion for learning, as well as that of their parents and partners when we held our annual piano recitals. Through these concerts, I have been fortunate to work with the Friends of Children with Rare Diseases. I can help raise awareness of the complexities and difficulties that children with rare diseases and their families face. With KMSK, I can help families tell their stories. We can all support them in raising funds."

Ambassador since 2020

Presenter at Radio Zürisee, speaker, actor and singer with "Heimweh"

"In our seemingly perfect world, we all too often forget how much luck it takes to be able to watch healthy children grow. We take it for granted and forget that many parents and children have to take a different path. As an ambassador, I want to help shine a little more light on all these other paths and make them a little brighter. On the one hand, for the people who are on such a path - but also for the people around them who may not even be aware of these other paths."

Ambassador since 2019

Solidarity song by Markus Stadelmann

Touching music video "Egal, was chunnt" as a solidarity contribution for Children with rare diseases and their families to mark International Day of Rare Diseases. The musician Markus Stadelmann, (www.linther.ch) and video producer Thomas Suhner have created a music video for and with for and with the non-profit organization for children with rare diseases created a unique music video: For the song "Egal, was chunnt" is together with the affected family of 5-year-old Fin (rare disease (rare disease West syndrome), a highly emotional film was created.