Donation
for Cyril

HELP AND GIVE CYRILL A BETTER QUALITY OF LIFE

Thirteen-year-old Cyril is a fighter! His life story has been characterized by medical challenges since birth. Even after numerous hospital stays and investigations, he still doesn't have a clear diagnosis and therefore falls through many cracks in the system. Despite many uncertainties, the ninth-grader is right in the middle of life.

CYRILLS LIFE

Cyrill has struggled with health challenges since birth, including a spontaneously closed heart defect and a severe case of RS virus in childhood. The epilepsy is now under control thanks to strict regulation of everyday life. Despite initial suspicions of certain diseases, molecular genetic tests revealed no evidence of them. Cyrill struggles with various health problems, including migraines and food intolerances. His genetic obesity and joint problems have a significant impact on his quality of life. He has therefore been connected to a CPAP ventilator at night for a year.

CYRILL'S DISEASE

As there is no clear diagnosis, Cyrill struggles with a wide range of symptoms that affect his quality of life:

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Genetic obesity & joint problems-

Prediabetes with insulin resistance-

Respiratory problems-

Countless pneumonias-

Migraines-

White spots on his skin-

Allergies & food intolerances-

Macrocephaly-

Three benign tumors in his heart-

Five genetic mutations

CYRILL'S FAMILY THANKS YOU FOR YOUR DONATION

We hope that Cyrill can continue to actively participate in life despite all the challenges. He is already on the waiting list for the Saxenda injection, a daily treatment to reduce his body fat percentage. In order to give him a better quality of life in the long term, Cyrill needs additional training with a special personal trainer. Although a coach has been found who can develop training and nutrition plans specially tailored to Cyrill's needs, he is neither paid for by the health insurance company nor by the IV.

We would like to thank you very much for your donation, which brings us closer to weight reduction and thus relief.

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Would you like to start a crowdfunding project as an affected family?

Are you registered in our KMSK Family Network and would like to use crowdfunding to give your affected child (up to the age of 18) a better quality of life?

We are happy to support you and offer you our platform to realize your crowdfunding project in just a few steps.

There are no costs for you and we will cover the bank charges so that the target amount is paid out without any deductions. If the target amount is not reached, we will pay you the amount raised in the 100 days.

Are you interested? Write us an e-mail so that we can send you the registration form: info@kmsk.ch

Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for affected families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been working on behalf of affected children and their families since 2014. We provide direct financial support (CHF 2.7 million has been paid out to families so far), organize free family events (more than 9,000 family members have taken part since 2014) to connect the 800 families in our KMSK network, and share knowledge about rare diseases with (newly) affected families, specialists and the media.

We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer