Donation for
Melina & Juliana

Chinese medicine for Melina and Juliana - improving their quality of life

Fate has Fate has struck twice for Anka and her husband: both daughters are affected by a rare affected by a rare neurodegenerative disease and will lose everything they have learned over time Lose everything they have learned over time. The parents of three are doing everything they can to To give their daughters the best possible support and improve their quality of life. Great Treatment with traditional Chinese medicine has been particularly successful.

Melina and Juliana's life

Until age of 1.5 years, Melina was a perfectly healthy girl and developed completely normal. Then her health suddenly deteriorated, she lost everything she had learned within a short space of time and is now in need of full care. Diagnosis: metachromatic leukodystrophy, a rare neurodegenerative disease Disease. However, Melina was not the only one affected by the disease Sister Juliana. However, she was barely symptom-free when she was diagnosed and was therefore allowed to take part in a gene therapy study. Even though the disease damage to her nerves and brain, she is doing much better than her sister better than her sister. Apart from walking freely, she has almost caught up and attends regular kindergarten with an assistant.

Melina and Juliana's family thanks you for your donation

It is it is our great wish to maintain and improve the quality of life of our girls and thus the and thus the whole family. Since the treatment by a chinese doctor, Juliana has made great progress towards walking freely. Melina Melina is also doing much better thanks to the therapy. This contributes to a higher Quality of life for the whole family. Thank you for helping us to continue Children with uncovered complementary medical treatments! support!

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Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for these families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been committed to helping affected children and their families since 2014. We provide direct financial support, create free family events (more than 2,200 family members were able to take part in 2019) to connect affected families and raise awareness of rare diseases among the general public. We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer