Donation
For Elina

HELP AND GIVE ELINA A BETTER QUALITY OF LIFE!

Elina is an admirable girl who can do a lot of things on her own. The tandem would allow us to experience many things with her senses, the wind, the chirping of the birds and the sound of the Rhine. Elina likes to talk about her experiences and has saved many wonderful moments. I hope there will be countless more.

ELINA'S LIFE

Elina's birth was completely normal. However, when she opened her eyes, I realized that something was wrong. The next day we went to St. Gallen. Unfortunately, the doctors didn't know what was wrong with Elina's eyes. They were cloudy and very light blue, like a mountain lake. At the end of the hospital stay, we made a second attempt and went to Zurich. Elina was put under anesthesia and after three eternally long hours, the diagnosis: Elina is blind. It was like a trauma for me, I just functioned that day and couldn't say anything. It took me a long time to come to terms with this diagnosis. After a genetic test, it turned out that Peter's anomaly was not inherited from us, but a freak of nature.

ELINA'S ILLNESS

Peter's anomaly is a very rare, congenital malformation of the eye with central corneal opacity and defect formation of the posterior corneal stroma. There is an adhesion between the cornea and the crystalline lens and peripherally between the cornea and the iris.

ELINA'S FAMILY THANKS YOU FOR YOUR DONATION

We very much hope that Elina's gross motor skills will be encouraged and that we will be able to take her on fun and enjoyable outings again. Elina loves being outside and doing things.

Elina would be very happy about your donation!

103%
12'850 CHF
of 12'500 CHF
0
days
out of 100 days left
73
Donor
Here to the donor list
Motivate your friends and colleagues to donate
Would you like to start a crowdfunding project as an affected family?

Are you registered in our KMSK Family Network and would like to use crowdfunding to give your affected child (up to the age of 18) a better quality of life?

We are happy to support you and offer you our platform to realize your crowdfunding project in just a few steps.

There are no costs for you and we will cover the bank charges so that the target amount is paid out without any deductions. If the target amount is not reached, we will pay you the amount raised in the 100 days.

Click here for the registration form: Link

Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for affected families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been working on behalf of affected children and their families since 2014. We provide direct financial support (CHF 2.7 million has been paid out to families so far), organize free family events (more than 9,000 family members have taken part since 2014) to raise awareness of rare diseases Participants) in order to connect the 800 families in our KMSK network with each other, impart knowledge about rare diseases to (newly) affected families, specialists and the media.

We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer