Katja's
Wish

KATJA - HER OWN CHILDREN'S BOOK AS A PROCESSING PROCESS

When Katja was unexpectedly diagnosed with Familial Mediterranean Fever FMF, a rare disease, in 2022, she had to realize that her most fervent wish of becoming a professional athlete could not be fulfilled. Part of the process of coming to terms with this was to write a children's book and talk about the subject of rare diseases. Please help to make this wish come true and give Katja a voice for those affected with this book!

On the occasion of its tenth anniversary, the Förderverein für Kinder mit seltenen Krankheiten is supporting Katja's children's book project with this crowdfunding and a consultation. In addition, all 830 KMSK families will receive the children's book as an anniversary gift.

ABOUT KATJA, THE AUTHOR

My name is Katja. I have always been an enthusiastic cross-country skier and dreamed of practising this sport professionally. But life brought unexpected challenges. In 2022, I was diagnosed with Familial Mediterranean Fever FMF. I experienced the uncertainty and emotional burden that comes with a rare disease. These experiences made me realize that there is an urgent need to raise awareness. I would like to use these insights to close the gaps in knowledge.

THE GOAL

By selling the book, I not only want to raise awareness, but also generate financial resources to support those affected. For this reason, CHF 5 per book sold will be donated to the Friends of Children with Rare Diseases. Through a joint effort, we can ensure that patients with rare diseases receive the care and support they deserve.

THANK YOU FOR YOUR DONATION

I am dependent on financial support to be able to realize my heart project. Together we can make a difference. Every contribution counts to sustainably raise awareness and improve the quality of life of those affected in the long term. We can create a world in which differences are not overlooked, but respected.

Thank you for your contribution!

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Would you like to start a crowdfunding project as an affected family?

Are you registered in our KMSK Family Network and would like to use crowdfunding to give your affected child (up to the age of 18) a better quality of life?

We are happy to support you and offer you our platform to realize your crowdfunding project in just a few steps.

There are no costs for you and we will cover the bank charges so that the target amount is paid out without any deductions. If the target amount is not reached, we will pay you the amount raised in the 100 days.

Are you interested? Write us an e-mail so that we can send you the registration form: info@kmsk.ch

Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for affected families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been working on behalf of affected children and their families since 2014. We provide direct financial aid (CHF 3 million has been paid out to families so far), organize free family events (more than 10,000 family members have taken part since 2014) to connect the 830 families in our KMSK network, and share knowledge about rare diseases with (newly) affected families, specialists and the media.

We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer