HELP AND GIVE NINA A BETTER QUALITY OF LIFE!
Nina's genetic microdeletion on chromosome 9q34 causes muscular hypotonia. This prevents her from building up sufficient body tension and coordination for her everyday tasks. Regular hippotherapy optimally strengthens her trunk muscles and thus promotes her stamina. As she becomes more independent in everyday life, she needs less support from us parents. This has a positive effect on Nina's self-esteem.
Nina's life
Nina is 6 years old and has a nine-year-old brother. Her start in life seemed easy at first, but after two years she noticed a severe developmental delay. The lengthy and complex diagnosis was finally the rare Kleefstra syndrome. Despite her impairment, Nina is very cheerful and full of zest for life. Thanks to the loving support of her family and those around her, Nina is developing well. However, her muscular hypotonia poses a major challenge in her life. With hippotherapy, Nina's trunk muscles can be optimally strengthened, enabling her to cope with everyday life more independently.
Nina's illness
Nina has a microdeletion on chromosome 9q34 (Kleefstra syndrome). This rare disease is associated with various degrees of developmental delay and corresponding limitations.
NINAS SYMPTOMS
- Muscular hypotonia
- Severe speech development delay
- Global developmental delay
- Heart defects
- Renal agenesis
- Visual impairment
Nina's family thanks for your donation
Our wish for Nina is that she can master her life as independently as possible. She has repeatedly shown that she can make more progress than we could have expected with a lot of effort and perseverance. Through hippotherapy, we want to further develop Nina's potential and strengthen her motivation and zest for life.
We would like to thank all our donors very much!
Thank you for making hippotherapy possible for Nina!