Donation
For Fiora

Help and give Fiora a better quality of life

When Fiora was born, the little family's happiness seemed perfect. The little girl developed beautifully and was already babbling her first words. But suddenly her development stagnated and even regressed. A genetic test confirmed the worst fears: Fiora has Rett syndrome, a very rare genetic defect that only affects girls and is particularly insidious. "All of a sudden we had a severely disabled child and had to prepare ourselves for the fact that our daughter would never be independent," say Fiora's parents.

Dolphin therapy for Fiora

Fiora cannot speak, cannot walk, suffers from epilepsy and cannot eat or play by herself due to her "hand-washing movements". Despite her difficult fate, Fiora is cheerful and loves to laugh. Her parents say: "Our daughter is a ray of sunshine and we hope so much that dolphin therapy will give her a better quality of life and more independence."

Fiora's family thanks you for your donation

Dolphin therapy has been proven to have a positive impact on the development of Rett girls: This should alleviate certain stereotypies and epilepsy and improve Fiora's everyday life. "During a visit to a non-therapeutic Dolphin Research Center in Florida, we noticed that the dolphins and Fiora communicate in a way that we don't understand. We were all sitting at the edge of the pool and the dolphins kept coming back to our daughter. Fiora was beside herself, laughed and blossomed - all this without being asked to do so by the animals. We then did some research on the Internet and learned from other affected families that dolphin therapy had been very successful for them. However, a 2-week therapy is very expensive and is unfortunately not covered by health insurance or disability insurance. We would like to thank you in the name of Fiora for your donation!

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Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for these families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been committed to helping affected children and their families since 2014. We provide direct financial support, create free family events (more than 2,200 family members were able to take part in 2019) to connect affected families and raise awareness of rare diseases among the general public. We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer